Sobre nós

Michael lives is East Islip, New York with his wife Nicole, also actively involved in PKS Kids(tm). They have 3 beautiful children - Jake, who was diagnosed with PKS at 6 months old and twins Kayla and Brandon. Michael has been involved in the media business for over 20 years and currently oversees a department responsible for digital properties and customer experience for Publishers Clearing House, where he is AVP, Entertainment Properties. He graduated from the University of Maryland at College Park with a degree in business management. Jake has his own website where all are welcome at www.jakezane13.com

Gretchen’s youngest child, Simon, was born in 2004 with Pallister-Killian Syndrome. Not having informational resources to help her deal with the diagnosis, Gretchen was determined to help others navigate through the world of PKS. To update friends and family, she created a website for her son and she's thrilled to know that it has been the first point of information for several families. Not wanting to stop there, she hopes that PKS Kids will help to make information about Pallister-Killian widely available for those who are still searching. Gretchen lives in Michigan with her husband Jim and children, Alex, Emily, Maddy, Natalie, and Simon. She may be reached at amens589@gmail.com. You may visit Simon's website here.

I live in Phoenix, AZ with my husband and 2 children. My youngest child, Phillip, was born full term and was diagnosed 12 days after birth with Pallister-Killian Syndrome.  With very little online information it was hard to navigate his care especially since doctors were not familiar with PKS.  I found my way to PKSkids through another parent I found on social media and it really made me feel part of a community who truly understood our feelings and what we would face. Being an advocate for my son, my family and families like mine is important. PKSkids mission to promote research, raise awareness in the medical community and providing support is such an honor to be a part of, knowing firsthand what the benefits and selfless labor of love this organization provides for parents and families.

​Kate lives in Peoria IL with her 2 sons. After several misdiagnoses Luke, 14 years old, was diagnosed with Pallister Killian in 2006 at 15 months old.   Kate has served on the Board of Directors in the past as well as the Missouri Dear Blind Advisory Project. She is passionate about working for disability rights for all living with PKS.

Tim lives in Olivet, MI with his wife, Annie, and their three children, Avery, Patrick, and Jameson.  Patrick was officially diagnosed with PKS at 9 months old in April 2011.  They attended their first PKS Conference a few months later in Washington DC and were touched and comforted by the sense of community of others going through a similar situation.  Tim works as a financial analyst for dentsu, a global advertising firm.  He has been a member of the PKS Board since October 2017.

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